Central Nervous System Diseases (CNS) Dataset

Diseases that result in progressive damage and degeneration of neurons in the brain and Central Nervous System include disorders such as Alzheimer’s disease, Parkinson’s disease, Huntington’s disease, Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), and others.

The prevalence of these diseases, particularly those that affect the aged, is predicted to increase rapidly in the coming decades. Supporting data suggests that the predicted number of cases of Alzheimer’s disease will quadruple by 2050. It is estimated that interventions that can delay disease onset or progression by just one year would reduce the number of predicted cases of Alzheimer’s disease by 9.2 million.¹

Actionable, research-ready, Central Nervous System (CNS) - specific data

Veradigm’s Central Nervous System Dataset is a natural language processing (NLP) enhanced, CNS-focused sub-section of Veradigm Network EHR Data. Because Veradigm has direct access to the Veradigm Network of electronic health records (EHRs), we can access and analyze unstructured notes that are not routinely offered with other deidentified real world data (RWD) providers – all on a massive scale.

Veradigm’s Central Nervous System Dataset can help you:

• Develop and better understand current therapies available for patients with CNS disorders to facilitate optimal patient outcomes
• Evaluate risk factors for CNS-specific diseases in important patient subgroups, develop prediction models for use in daily care, and improve the quality of patient care
• Understand a more complete picture of the patient journey while still allowing researchers to distill down into the details of care
• Spend less time managing the data and more time on analysis that provides great results

Key Features Available

With Veradigm’s CNS Dataset, you can access the best features of Veradigm Network EHR Data and enhanced NLP tables containing structured data from semi-structured EHR data fields and unstructured notes. All of this is integrated into an easy-to-use, industry standardized format, enabling researchers to gain deeper insights into therapeutic decisions, disease progression, and patient outcomes.

• Continually growing data set of more than 4.7 million patients in the CNS cohort within the Veradigm Network
• Custom NLP Enrichment available
• Specific NLP models for CNS elements
• Key disease states covered in the CNS-focused data set:
  • Alzheimer’s disease
  • Amyotrophic Lateral Sclerosis (ALS)
  • Frontotemporal Dementia
  • Huntington's disease
  • Lewy Body Dementia
  • Migraine

  • Multiple Sclerosis (MS)
  • Multiple System Atrophy
  • Parkinson’s disease
  • Epilepsy
  • Cerebral Palsy

Understand a more complete picture of the CNS patient journey while still allowing you to distill down into the details of care. For key NLP terms, please reach out here.

Technology Delivered Directly to You

Never be left in the dark with expert technical and analytic training and support by Veradigm’s real-world data subject matter experts.

• Direct access to de-identified Veradigm Network EHR Data and NLP tables in a deidentified, manageable, and queryable manner, specific to CNS diseases
• Record-level data will be hosted in a designated Snowflake location with the ability to support alternative delivery methods if necessary
• Platform and software agnostic

Flexible delivery cadence that includes one-time, monthly or quarterly deliveries to suit your needs.

Get Started Today

References:

1. Challenges in Neurodegeneration Research - PMC (nih.gov)